Not trending well

>> Wednesday, July 1, 2009

We have hit another wall unfortunately with Kamryn. We have stayed pretty constant on ventilator settings for a few days now, but today her carbon dioxide has elevated. We want to see this in the 50's, ok with the 60's, and concerned with the 70's. Earlier today her CO2 was 76 and tonight her CO2 was 80. They raised the rate to 53 breaths per minute from 48. No other changes were made. They will take another blood gas at 4:00 in the morning to see where she is at. I am so concerned right now about the direction things are going that my stomach is completely knotted up. I am losing some confidence in a number of things and it may just be that I don't understand everything that is happening. I truly feel like I am about to explode right now. I will probably wear a hole in the carpet from the pacing I will be doing all night. Please pray for our little girl to get over this hump and get back into positive territory.

Shawn

16 comments:

ashley ohls July 1, 2009 at 10:59 PM  

I've been praying for little Kamryn, and I hope she continues to stay strong. Love you all!

Anonymous July 2, 2009 at 1:19 AM  

Praying through the night for K., her medical team and her parents.

Christina July 2, 2009 at 7:17 AM  

Lots of prayers for your precious one!

Michael and Elizabeth Reeve July 2, 2009 at 7:25 AM  

I'm sorry for the delay in posting but please know that you're always in my thoughts & I pray that baby K progresses. I long to meet you & your beautiful girls. We have had some very hard days in the NICU & no one can discribe the difficulty of watching your little one go backwards. Our only help was to place James in God's hands every night before bed...he gave us the courage.

Sending big love to you all.

Mike, Beth & Baby J xxxx

Anonymous July 2, 2009 at 7:50 AM  

Prayers and good thoughts to Kamryn and your family. Please let me know if there is anything I can do to help.

Love,
Pam Szoke

Maxton's Mommy July 2, 2009 at 7:59 AM  

Hang in there guys. The tough days are always so draining and leave you feeling powerless and scared. Little Kamryn is a fighter and she will get over this bump.You are in my thoughts always.

Ash

Anonymous July 2, 2009 at 8:24 AM  

We are praying for your family, and especially Kamryn. We are praying for healing for Kamryn. The Lord can do it. All things are possible.
Love, Maggie and Jim

Craftysis7 July 2, 2009 at 9:26 AM  

Praying for the Lord to give you his peace that surpasses all understanding. Praying for your little Kamryn to have a very positive day! Hang in there, God is in control!!!!

Sissy
Nashville, TN

Kimberley July 2, 2009 at 9:47 AM  

Kamryn is in our prayers, along with your entire family. We continue to lift up the medical team working with Kamryn, as well.
Much Love, Kimberley, Jason & Emma

Anonymous July 2, 2009 at 11:11 AM  

Praying for Kamryn! Keep fighting little one!

Karla
Mom to Brooke and Braden (RCDH born 3/13/08)

Holly and Bo July 2, 2009 at 11:24 AM  

You don't know me...I link to your blog through Sarah G. as I'm good friends with her sister-in-law, April. I've been reading your blog some and am praying for your little girl. My husband and I just had our son May 3rd, 8 weeks early. He spent 30 days in the NICU and although he did not have to have surgery like Kamryn, I can tell you we experienced so many of the emotions you write about it. Feeding was our biggest struggle. I don't know how many times they started and stopped them but eventually he got on track. No one can quite understand the 2 steps forward, 1 step back kind of stress like a parent who has had a child in the NICU...I sympathize with the pain you are experiencing. Hopefully today has been a good day for you and your family. You are in my thoughts.

Tracy Meats July 2, 2009 at 12:12 PM  

Fight Kamryn Fight!! Praying that your princess has a good day today and her CO2 levels have come down. There will be bad days with the good and I know it is the hardest thing to watch and go through. I can relate to feeling like you are going to explode and I did on many days Ian was in the NICU. Hope Kamryn gets over this hump soon. Sending you lots of positive thoughts and energy today!!

Much love, Tracy

Bethany July 2, 2009 at 2:08 PM  

CDH is such a roller coaster, but Kamryn has laid a strong foundation...praying this is just a tiny speed bump. I think of you guys all the time.

Bethany Gillham

The Griffin Family July 2, 2009 at 7:51 PM  

Praying like crazy for you guys. She is such a fighter already...she will pull though the little rough spot. Keep us updated!

Baby K Mama July 2, 2009 at 8:06 PM  

I know how you feel- when Kayla had her CO2 up.. it was frustrating to know you couldn't help. I can't believe they are waiting till 4a.m.... Kayla at one point was getting a blood gas every two hours. Hang in there.. the roller coaster ride is bumpy, but the high bumps are so fantastic!! :) And eventually one day they will be continuous! :)


We are praying for Kamryn and her family! :)

Aunt Judy and Uncle Bob July 3, 2009 at 4:11 PM  

The blog is wonderful. I can't wait to read it every day. Our hearts are with you and Kamryn. She is so precious, and such a part of the family already. We love you, and keep you close in our thoughts and prayers.
Love,
Judy

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