Still doing great

Kamryn had another great day yesterday and they also removed her from her Versed medication. This has been used from day 1 to keep her somewhat sedated and they turned the pump off yesterday. That means she just has one more medication, Fentanyl, to get rid of. Fentanyl is a heavy duty pain medication that is more potent than morphine. Unfortunately, she has been on this everyday of her life so far and surely has developed some level of dependence on it. They are going to have to wean her slowly off of it and if my calculations are right, it could take another 2 to 3 weeks before they can turn it off.

Kamryn managed to pull her stomach tube out last night so she has to have it re-inserted which I am sure isn't pleasant. She is just totally awake and active now, which is great if we can keep her hands away from her face. We both were able to hold her yesterday and I was so happy to see the actual ventilator machine was completely gone from her bedside. I think she has proven that she is fine on her own!

Stef's step sister, Becki, was in town yesterday and they drove up to the hospital together to visit Kamryn. They had a great time, and she was just in awe of both Kamryn and Brooke. It was so nice to see her, and we look forward to her visiting again in August.

Well, Hollie and I went fishing yesterday and she has proven to be pretty good at it. Here's her biggest catch of the day:


We are continuing to do great and I will post tomorrow night with all the updates after we speak with the doctors about next steps.

Take care,
Shawn