>> Sunday, August 2, 2009
Kamryn is scheduled to be discharged tomorrow!!!!!!!!!!!!!!!
I haven't posted about it yet, but Kamryn made the news here in Dallas on Friday! Channel 33 came to the NICU to do a story on her and the care she received at Parkland. I think they did a great job with it and most importantly it served to get the word out more about CDH. If you haven't checked it out, you can click on the video link at the top right of the blog. I would view it in full screen (just hover over it and it will give you the option to click on full screen). There has been talk about the local CBS station coming out tomorrow to do a story, but it hasn't been confirmed yet.
Today, Stef has spent time getting everything ready for Kamryn's arrival. I got the second car seat out and installed it in the car. We got more bottles and I think we are all set at this point. Hollie is away at Uncle Bob and Aunt Judy's house in Houston which actually worked out very well. It will give us time to get a routine down next week before Hollie comes back home.
I can't believe how nervous we are. Honestly, there were a number of days that I truly wondered if this day would actually happen. We prayed it would, but there were a lot of signs that pointed to the possibility of her lungs not being able to catch up. Now that the day is here, we are so excited, but so nervous. Not sure if other CDH families experienced the same thing, but it's a little scary. What if she starts breathing heavy? What if she starts spitting up? What if she stops bowel movements? Does this mean she has reherniated or there is something wrong with her lungs? Do we rush her to the ER or just take her to the pediatrician? I feel myself getting over protective of her already and I have to let that go. You tend to go through so many scenarios and it gets a little scary. I wish we could bring our primary nurses home with us!!!! They would know what to do :)
We will figure it out and I know it will all be fine. We are just nervous and I expect that is typical. We aren't sure what time discharge will be. We will head up to the NICU in the morning and just see what they say. I guess it is possible that we get there and they change their minds about Kamryn going home tomorrow, but I think that's a pretty slim chance. I fed her a bottle today and she doesn't have any problem eating and there are no signs of withdrawal from the meds! Get this, I held her today for the first time with absolutely nothing connected to her. No monitors making noise, no wires, no tubes, absolutely nothing!
We will post pics tomorrow night of her homecoming and reunion with her twin Brooke. We can't wait to get them together.
Have a great evening everyone and wish us luck tomorrow!