>> Wednesday, November 10, 2010
Here is the latest email from Jennifer...
Ava continues to rest and take small steps forward. She got another new ECMO machine yesterday (the 3rd now) because the old one was developing blood clots which is common. The procedure to transition to the new machine was smooth. They cover Ava completely with drapes and as the ECMO specialists were finishing up, Ava raised her right arm through the drapes which had everyone in the room smiling. It was like she was saying, "hey docs don't forget about me under here."
Todd and I enjoyed a nice evening with Ava. She had her eyes open for about an hour and we talked, sang some lullabies, and read stories to her. She follows the pictures with her eyes and is very alert. I think Goodnight Moon is her favorite book.
The doctors are back to day by day on ECMO to let her PAH resolve and lungs rest. It's been 16 days since she's been on ECMO and they are keeping her flows at full capacity until they try weaning again. Not sure when they will happen.
Ava and Todd are both asleep so I think I'll try and join them in their sweet dreams. Goodnight - will update in another few days. We send our love and thanks to everyone!
Also, there is a girl in my Mops group who has a friend who needs prayer as well. Her friend's name is Michelle. Her son was born on November 2nd, not anticipating any problems at all. Within 24 hours, he developed sepsis. Sepsis is a severe illness in which the bloodstream is overwhelmed by bacteria. Last night, he was being weaned off the ventilator. He was on a lung bypass. They also discovered a small bleed in his brain yesterday and are watching that. As she said, "lots of bumps in the road." She (Michelle) and Brian appreciate all prayers!
I know that I'm not the healer here, God is. But, if I can get the word out to as many people as possible, God will hear us. I just want to make it right for everyone, and I feel helpless at times. So, posting about this some how helps.
As for the twins. Well, I hate to mention them right now, as these babies fight for their lives. The girls are doing well, and are learning how to battle each other for toys. That's all I will say for now. More later.