>> Monday, June 29, 2009
It's been a very positive couple of days and we couldn't be more proud of our little girl. She's back to kicking some CDH butt! The medical team has taken her back down to 22 on her peak pressure. To put this in context, she was at 20 just before surgery and was up to 30 for a couple of days after surgery. One of the targets will be to get this peak down to the mid teens before we can take her off the vent. She is definitely making progress! All of her blood gases over the past couple of days have been great and her carbon dioxide levels have been holding steady in the 50's. We like them in the 50's, can tolerate them in the 60's, and need a new plan if they are in the 70's. They have taken the arterial line out of her ankle because it was clotting a bit. This is actually good because it is one less tube and one less possible source of infection. Bad part is they have to stick her in the heal to get blood each time now.
We started her out on 1ml/hr of breast milk yesterday. This is really next to nothing, but a start. She did so well holding it down they went to 4ml/hr and she seems to be doing fine with that. I think we can conclude that her stomach is indeed working fine at this point!
We are so happy to have Monica and Tracy back with Kamryn in the NICU. Monica is her primary nurse for the evenings along with Gretchen and Tracy is he primary day nurse. Tracy moved Kamryn to her stomach today and she slept in that position for hours. It's the first time since birth she hasn't been on her back and she loved it! I just walk in there everyday and count our blessings for the nursing staff. They are just amazing to Kamryn and to us. We found out today that our Neonatologist that has been directing Kamryn's care since she was born is off service starting tomorrow. We should meet the new doctor tomorrow. Definitely a little nervous about this change, but keeping an open mind. We have been assured that he is wonderful.
Stef's sister, Jennifer, is in town for a few days and we are so excited. They actually just left to go up to the hospital to see Kamryn.
Well, that's about it for today. We are in good spirits and Kamryn is moving in the right direction! Here's some pictures from yesterday. Talk to you all tomorrow.