>> Friday, June 19, 2009
We just continue to be amazed by these little warriors we have. Kamryn did in fact have a blood transfusion last night and it helped her crit get back up to the mid 40's. This is great news and she definitely needed that help. Amazingly, they are talking about surgery today if the heart echo looks good. They are actually doing that echo as I type and we have signed the surgery consent forms. Kamryn could get even better in the days to come, but she could also get worse. While there could be a better time for surgery, when she is in a pretty good condition they need to sieze the opportunity. Today may be that time although my gut tells me the echo is going to show significant shunting of blood and a high amount of hypertension which could delay it a while. Hopefully I am wrong. The bottom line is Kamryn had a great night and is exceeding expectations. Her trend has been nothing but good from day 1 and she continues to overcome everything in her way. She is nothing short of amazing and I couldn't be more proud of my little girl!
I was able to hold Brooke for about 20 minutes this morning and she just slept the entire time in my arms. She is kicking butt also as she is now off of her CPAP assistance so she is breathing room air with no problem and is keeping her blood saturated with oxygen all by herself. We think the orogastric tube will come out today and Stef may be able to breast feed her!! What a milestone that would be.
I am really just on top of the world right now with everything. I really don't know that we could have asked for anything more and definitely didn't expect things to go this well. We know everything could change in a minute, but the trends don't indicate that will be the case.
Hollie was up here yesterday, but she still hasn't been able to see her sisters. They have a ban on children in the NICU due to the swine flu. We hope they will make an exception at some point even for 5 minutes. Hollie is really handling everything well. We have 3 really amazing children now that I am so proud of.
Stef just got out of the shower - another milestone!! We are going to try walking around the halls this morning until noon when we can go see our girls again in the NICU.
If they take Kamryn to surgery this morning we will update the blog and if not, we will have an update this afternoon for everyone.
Thanks so much for the thoughts, prayers, and support. It's all working so well for these girls!