>> Wednesday, June 24, 2009
I couldn't be more proud of my little girl and her determination to beat CDH! She has again gone down on her peak pressure and is now at 25. She was at 30 just a couple of days ago and she gets a lot less agitated now when she is moved or touched. We need to get these peak pressures down to around 15 before we can look at graduating to the CPAP breathing assistance. There are other things that will need to happen, but that is one of the big targets. We can hear bowel sounds today and her lungs sound much more clear. The chest x-rays show her heart shifting a little more to the center of her chest and her right lung is inflating more. Each day this gets a little better and we couldn't be more happy!
The NICU nurses continue to be absolutely wonderful to Kamryn and to our family. Each day, Hollie writes a letter to Kamryn and attaches a picture that they put up above her bed. Then, they write a letter back to Hollie with a picture. It makes Hollie feel so good and helps tremendously since she is not allowed in the NICU at all. Here is today's letter from Kamryn. How cool is this?
I just can't say enough about the entire medical team up there at Parkland. Just amazing!
Stef and I have a big night planned. We are going up to the hospital to see our little girl and then we are going out to have a date! Jackie is watching Brooke and we are going to get to go to dinner together and try to relax for just a couple hours. We are really looking forward to it.
Well, that's about it for today. Kamryn keeps on fighting and your thoughts and prayers are getting her and us through this journey each day. We appreciate all of you so very much!