Amazing progress!!

>> Wednesday, July 15, 2009

Each day we get more nervous that we are going to hit another brick wall with her progress, but each day Kamryn just amazes us. They have focused on her rate (number of breaths the vent pushes per minute) and the progress is unreal. To put it in perspective, for the first 21 days or so her rate stayed between 50 and 60. Over the past few days, she has managed to allow it to come down from 48 to 24. Tonight, they plan to wean her down to 20 which is our loose target on that setting before she can be extubated!

Her pressure has been in the low twenties for a number of days now while they work on the rate. Her highest pressure has been 30 and tonight she is down to 20. She doesn't have far to go to hit the target of 15 - 18 before she is extubated.

She has done all of this over roughly a week. I was able to see her chest x-ray yesterday and she doesn't look like the same baby from just three days prior. You can actually see her left lung now and it looks to be fully engaged in the air exchange process! Her right lung looks great and her heart has shifted more to the left. It's like she just flipped a switch and said she is ready to get on with things. It's just amazing and we really are on top of the world right now with how well she is doing.

I won't make any guesses as far as when she will be off the vent, but if she keeps going at this rate, it can't be too many more days. We are praying that she doesn't hit a brick wall.

Monica, one of her primary nurses put this together for us and I just had to post it.


Aren't her nurses amazing! It's been 29 days and her nurses have helped us keep it together and I just can't say enough about them!

We have to thank Allison from our Sunday school class who was just amazing today! She watch Hollie and Brooke and made us dinner and gave Stef and I the ability to be up at the hospital together today at the same time. Our friends are generous beyond words!

Well, that's it for tonight. Everything is going better than we could have expected. I hope to be able to tell you all that she is successfully down to a rate of 20 tomorrow!

Take care,
Shawn

12 comments:

Anonymous July 15, 2009 at 9:45 PM  

Those numbers are awesome--way to go Kamryn!! we are pulling for you everyday.


the Hodges family

Maxton's Mommy July 15, 2009 at 10:11 PM  

:-) I knew that little girl just needed some rest.... glad to hear no "freak outs" should be happening. heheh.... I will cautiously celebrate with you all.

Ash

Elizabeth July 15, 2009 at 10:37 PM  

They just need time and let her lead in this dance - so to say. Hard to swallow but it seems to be the case with most of these babies. They direct we just are there for the ride!

Glad she is moving in this direction - next step - extubate - then the feeding (another great hurdle!)

Keeping you all in my thoughts and prayers,
Elizabeth

Tracy Meats July 15, 2009 at 11:06 PM  

Go Kamryn Go, Go Kamryn Go!!! What an awesome day and I hope tomorrow is great too! Kamryn is telling you she is ready to come off that vent very soon....her body just needed rest and time to heal. I think your nurses are amazing...l love that they take the time to write notes to Hollie and the family, very sweet of them. Many prayers for more good days and no hurdles in that little girls way!!!

Go Kamryn Go, Go Kamryn Go!!!

Hugs, Tracy

Jen July 15, 2009 at 11:30 PM  

Way to go Kamryn!! Keep it up sweet girl!

Laurie July 16, 2009 at 5:55 AM  

Awesome!! Praying the great progress continues....

AliciaB July 16, 2009 at 6:36 AM  

What great news! That just made my morning! Kamryn is doing so great! She's such a fighter! : )
Hugs and prayers coming your way!

Jonathan and Sarah July 16, 2009 at 8:33 AM  

That's awesome!

Anonymous July 16, 2009 at 8:37 AM  

How wonderful Kamryn is doing so good. I can't wait to see her and Brooke again. I know they have both changed so much! Keeping those prayers coming for precious Kamryn.
Love,
Aunt Judy

Anonymous July 16, 2009 at 8:46 AM  

What wonderful news about Kamryn. I can't wait to see her and Brooke, I know they have changed so much! Keep it up Kamryn, many prayers are with you! We love you all!
Love,
Aunt Judy and Uncle Bob

Anonymous July 16, 2009 at 10:17 AM  

Yea! Yea! Yea! Keep up the good work Kam...you ROCK!!!

I know she is working really hard at this...she is such a fighter. Hmmm, wonder where she gets that from? Her parents don't back down from anything why should she?

We loved having Hollie with us last night. She and Maddy had fun and we can't wait to do it again soon but on a day when Maddy doesn't have tumbling so they can play longer. They did play "flashlight tag" with the neighborhood kids last night. I think they had fun!

Call if you need anything. God bless Kamryn and God bless all of you!
Love, Paige

Sarah and Barry Mayer July 16, 2009 at 10:20 AM  

Way to go Kamryn! Glad to see her stats are trending well and in a positive direction. She is kicking some major CDH bootie!

Cheers,
Sarah

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