>> Tuesday, July 14, 2009
Kamryn had a great day and I have updated her condition over on the right hand side of the blog under current condition.
While I would love to talk about Kamryn's progress today, tonight's post and focus needs to be about an amazing family and courageous girl, Baby Avery. I talked the other day about how this experience has taught us so much about how precious life is and that lesson is even more clear tonight. Sometime this evening, Shane and Carissa are going to make what I believe is the most difficult decision any parent could possibly make. They are going to stop all of Avery's assistance and let her go.
Stef and I have imagined that day as you have to face that possibility with CDH, but even with Kamryn fighting for her life, I can't truly understand or appreciate what these two amazing people are going through. Shane and Carissa have been such an inspiration to us and have taught us so much over the past few months and all of this just seems so unfair. I'm more angry right now than anything and just can't believe how cruel this condition really is and how it can take so many precious babies from the most amazing parents. What these babies endure at such a young age is heartbreaking and inspirational at the same time.
I would be lying if I didn't feel incredibly guilty that we are celebrating small wins these last few days when I know that Shane and Carissa and other parents are struggling to find an answer for their child's deteriorating state. I just don't understand why all of this has to happen and what purpose it serves. I know that Shane and Carissa are struggling with this question even more than I am right now and wish I had an answer for them to ease their pain. I ask that if you only post one time ever on these blogs, that you will go over to Baby Avery's blog (Keeping up with the Keirseys) and send them a message. Trust me, it means so much to the families going through this.
Shane and Carissa, I am so very sorry that Avery's journey with CDH is ending like this. I don't have the words to make it better, but you need to know that you all and Baby Avery are in our thoughts and prayers. You have been an inspiration to so many people and Baby Avery has touched so many lives. We are just so sorry.
Shawn and Stephanie