I don't need a PICC line!!

>> Thursday, July 23, 2009

We reached another milestone today which was to remove Kamryn's PICC line. This is the line she has had from day 2 or 3 that was inserted into her upper arm and ran all the way to her heart. The main function of this line has been to deliver the sedative Versed and the pain medication Fentanyl. They completely discontinued the Fentanyl today (Versed was DC'd a number of days ago) which means she doesn't need that line which was just 1 more likely place for infection to happen. Kamryn slept right through the procedure as you can see below and Stef was able to hold her while it was being done.


That's the great news. The not so good news is we have a 1 month old in rehab right now trying to kick her drug dependency. The plan now is to administer Methadone which is a narcotic, but a longer acting narcotic than the Fentanyl through her feeding tube and then wean her slowly from the Methadone. I haven't seen the weaning schedule yet, but I anticipate it will take a week or so to get her off the drug.

We are just on top of the world right now that the line is out. The only line she has left is the feeding tube in her nose. They will continue to feed her through that as they increase her bottle feedings over the next few days. Right now she is alternating feeds between the bottle (2 ounces) and her feeding tube (2 ounces).

Our Sunday school class continues to be just amazing to us. Mandi brought us an incredible dinner last night. Melanie from Stef's bible study group bought us pizza tonight. These acts of kindness continue to keep our life more manageable!

Allison from our Sunday school class watched Brooke and Hollie today while Stef went up to the hospital. Allison, thank you so much for watching both of the girls today. We know you had your hands full today with all four kiddos, and we can't thank you enough for the time you spent with Hollie doing projects (even through all the drama - LOL). Check out the onesies that Hollie made with Allison today:

Yes, you read that correctly. Hollie put "Kamryn U Love Me". I don't know either. That's just Hollie.


Tammy and Melanie, from Stef's Bible Study group went with her to the hospital today. It meant so much to Stef to have them there to spend time with Kamryn!
We are continuing to celebrate the amazing progress that Kamryn is making everyday. We know there are so many people who read this blog daily and say prayers everyday for our little girl and family. Please know that we know you are out there and appreciate you sharing this journey with us! You all have become a part of our lives just as we have become a part of yours. Thank you!

Shawn

10 comments:

Candice and Rob Beal July 23, 2009 at 8:45 PM  

i love the pics! i am just so happy for you and the family that kam is doing so great. i pray she does well getting off drugs! those poor babies really do have to go through sooooo much......she will overcome this and be home in no time....
love candice

The Griffin Family July 23, 2009 at 9:01 PM  

im so happy for you guys!! :)

Maxton's Mommy July 23, 2009 at 9:42 PM  

:-) kamryn has graduated to baby rehab! hehe... that made me giggle to the point where I think David thought I was losing it. Many prayers for you guys!!!

Ash

Anonymous July 23, 2009 at 10:36 PM  

Such fantastic news! And what a great birthday present if Kamryn gets to come home on your birthday! Can't wait to see you when we return from vacation! Hugs coming your way!
Alicia

Anonymous July 23, 2009 at 11:20 PM  

Hey, you knew that little "hawglet" =)would be a fighter. She is proving it now. We could not be happier for you 5 sweet people. God is so good.
Sweet dreams........
Bronwyn, Jim and Matthew
PS..Hollie will have to design an outfit for Matthew !!!

Phillip and Kerri Burnside July 24, 2009 at 7:08 AM  

Hi Shawn and Stephanie

I haven't been online in a few dayss was so so pleased to read how well Kamyrn is doing! She really is a little fighter and it looks like you are going to have your whole family together at home very shortly! I am sure you cannot wait!

Take Care
Kerri and Phillip x

Craftysis7 July 24, 2009 at 11:30 AM  

What wonderful news that Kamryn is doing so well! Will continue lifting you all up in prayer!! You have a beautiful family!

Sissy
Nashville, TN

Anonymous July 24, 2009 at 12:23 PM  

So happy to hear Kamryn is getting so much closer to coming home for good! And, Stef, you look just beautiful! How do you do that?
Love you! Courtney
Tell Hollie I think she should be a fashion designer!

Elizabeth July 25, 2009 at 5:26 PM  

Yeah - these little addicts that they are ;-). Considering what they have to go through? I love it Kamryn is unplugged! :-)

I love the family pictures and Hollie did an amazing job on the onsies! She is such a wonderful big sister!

Keeping you all in my thoughts and prayers,
Elizabeth

The Adler's July 25, 2009 at 11:22 PM  

It is very nice to see Kamryn doing well and "winning" her CDH battle.

Keep up the great work!

Jeremy & Carrie Adler (Carter's Parents)

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