I'm completely tube free!!!

We are just on top of the world right now after seeing Kamryn without her NG tube (feeding tube). We were told it should be soon, but weren't totally expecting it today. Stef and I met up at the NICU at noon and went back to see Kamryn. Traci, one of her incredible primary nurses, gave us the schedule of events for the day. We were going to take out her NG tube, give her a bath, and then feed her. It was wonderful and for the first time, everything seemed "normal" if that makes sense. After all these days, it is amazing to hold your child and not have to worry about moving tubes and wires around. She literally had NOTHING connected to her!!!

At this point, Kamryn is eating all on her own now and only has to deal with the drug withdrawal. That process is actually going better than we could have hoped for. So far, there are no signs of withdrawal and they are aggressively weaning her from the Methadone. At this rate, she should be done by Thursday or Friday as long as she doesn't show us any negative signs. We are so close to discharge we can barely stand it. Here is our little girl:

This is Traci getting ready to pull the tube out:


And here is Kamryn tube free!!!!


*** Yes, I am sneaking Rogaine into the NICU to work out the hair issue. I'm on top of it, I promise.

It has been a terrific day and hopefully the rehab continues to be uneventful. We will keep you updated tomorrow with any new developments.

Rob and Candice Beal are beginning their CDH journey today with the arrival of their son Jackson any minute now. If you haven't already gone over to their blog, I encourage you to do so to get updates on their progress. Please join us in praying for them and Baby Jackson as they begin this journey.

Take care,
Shawn