I'm completely tube free!!!

>> Tuesday, July 28, 2009

We are just on top of the world right now after seeing Kamryn without her NG tube (feeding tube). We were told it should be soon, but weren't totally expecting it today. Stef and I met up at the NICU at noon and went back to see Kamryn. Traci, one of her incredible primary nurses, gave us the schedule of events for the day. We were going to take out her NG tube, give her a bath, and then feed her. It was wonderful and for the first time, everything seemed "normal" if that makes sense. After all these days, it is amazing to hold your child and not have to worry about moving tubes and wires around. She literally had NOTHING connected to her!!!

At this point, Kamryn is eating all on her own now and only has to deal with the drug withdrawal. That process is actually going better than we could have hoped for. So far, there are no signs of withdrawal and they are aggressively weaning her from the Methadone. At this rate, she should be done by Thursday or Friday as long as she doesn't show us any negative signs. We are so close to discharge we can barely stand it. Here is our little girl:

This is Traci getting ready to pull the tube out:

And here is Kamryn tube free!!!!

*** Yes, I am sneaking Rogaine into the NICU to work out the hair issue. I'm on top of it, I promise.

It has been a terrific day and hopefully the rehab continues to be uneventful. We will keep you updated tomorrow with any new developments.

Rob and Candice Beal are beginning their CDH journey today with the arrival of their son Jackson any minute now. If you haven't already gone over to their blog, I encourage you to do so to get updates on their progress. Please join us in praying for them and Baby Jackson as they begin this journey.

Take care,


Anonymous July 28, 2009 at 7:49 PM  

So excited for you all! Keep up the good work Miss Kamryn! Wonderful news!

Susie Dutcher July 28, 2009 at 7:49 PM  

She is just beautiful! As much as we would love to meet Kamryn and you all, we are thrilled that she probably won't be there next week when we're up for a consult :) God bless

Maxton's Mommy July 28, 2009 at 7:57 PM  

:-) I am trying to figure out who Kamryn looks like most now that I can get a GOOD look at her... I def. see you both. :-) what a wonderful "gift" today!

Chanda D Brady July 28, 2009 at 8:01 PM  

Awesome!!!! Glad to hear that Kamryn has done so incredibly well!...I'm also glad to hear that Candice and Rob have you guys in their lives right now. Chanda

Baby K Mama July 28, 2009 at 8:29 PM  

YAY!! :) The tube free moment is a great one!! :)

Ailsha July 28, 2009 at 8:57 PM  

That is the most amazing news...I am so happy for you!!! I can't wait to read that you have brought her home...soon!!!!

Liz and Shane July 28, 2009 at 9:05 PM  

I am so excited for you! Kamryn is wireless, yay! Can't wait for you to take your Warrior Princess home.

Jen July 28, 2009 at 11:40 PM  

Yay Kamryn! What a great feeling to be tube free finally. It's so great to see her beautiful little face without anything hiding it!

Anonymous July 29, 2009 at 6:32 AM  

This is beautiful news! It is a wonderful thing to be able to see your baby without tubes and wires and to enjoy walking around together for the first time. All of this is miraculous and such a blessing from the Lord. Have a wonderful day,
Kelly Peacock Austin TX

Anonymous July 29, 2009 at 7:23 AM  

Congratulations, this is wonderful news! I couldn't be happier for your family. Cate Miller

Anonymous July 29, 2009 at 8:26 AM  

Absolutely beautiful baby!!!! Congratulations on the great progress! Continuing to pray for no bumps in the road though.

Christina Jones - dpsg July 29, 2009 at 9:40 AM  

AWESOME news !! I am so happy for your family !! Kamryn is an amazing little fighter and will be home soon !! Praying for continued strength and healing.

Anonymous July 29, 2009 at 10:24 AM  


Can't wait for her welcome home party! (wink,wink)

Don't worry about the hair thing...Maddy was bald FOREVER!

See you tonight!
Love you guys!

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