>> Sunday, July 5, 2009
We have made it 19 days and it seems like a lifetime already. It's harder because I just don't see any real progress being made with Kamryn. Kamryn is still on the conventional ventilator and her peak pressure setting has been between 22-25 for so many days now. The number of breaths that the machine helps her with each minute (rate) has been between 50 - 60. They tried again to bring the rate down yesterday and her CO2 is back up in the 70's. This becomes more frustrating as each day passes. Honestly, there just doesn't seem to be any light at the end of this tunnel because we just stay stuck. They try to lower the rate, CO2 goes up, we chase her by raising everything up again, and we are back to where we started. We do this routine every couple of days.
On a positive side, she has handled her feeds well and today we will go up to 2ml/hr. This is roughly 1.6 ounces over a 24 hour period. Not a lot, but it's a start.
She was alert yesterday for a couple hours and even tried to smile a couple of times. I hope she will do that more for me today when I am up there.
The doctor didn't come by yesterday while I was there so hopefully I get a chance to talk with him today. I'll let you all know how that meeting goes.