Time to move forward

>> Saturday, July 11, 2009

Looks like Kamryn did just need a couple days to catch up with her new settings and is telling us she is ready to move forward with another decrease in vent assistance. Tomorrow at 2:00am they plan to wean her rate down from 48 to 46 and will take a blood gas at 4:00am to see how she did. The decision was made to drop the rate because her gas this afternoon showed CO2 down to 64. Thanks Emma for calling me to let me know! Emma isn't one of her primary nurses, but has had numerous shifts with her and is just fantastic. She showed me today how I could put my hand under her back to give Kamryn the feeling that she was being held. She became agitated a couple of times when I was there and doing this calmed her right down.

Kamryn is still doing well with her feeding and I think they are almost ready to increase that also. We were also asked to bring her some outfits! She is wearing clothes now. I know that sounds like no big deal, but the things we take for granted with Brooke are huge milestones with Kamryn. Every little thing is one step closer to getting past this situation.

Angel and Avery, our next door neighbors, invited us over for dinner tonight so we are about to head that way. They are great friends and spending time with them helps us tremendously to get our minds off everything for a little while.

That's about it for today. We are thrilled and pray she handles this wean and then just one more step on her pressure from 21 to 20 and we will be back to where she was before her surgery and ready to truly make it into new territory on the vent since she was born. We are just so optimistic and hopeful right now.

I will be sure to let you all know in the morning how she handled the change. Take care,

Shawn

7 comments:

Jennifer July 11, 2009 at 7:35 PM  
This comment has been removed by the author.
Jennifer July 11, 2009 at 7:39 PM  

I am so very proud of my brave little niece!!! You all are doing such a great job staying positive and keeping us informed. We are praying for continued progress.

Our love to all!

Auntie J, Terry, and Madelyn

Maxton's Mommy July 11, 2009 at 7:39 PM  

Woohoo! Go Kamryn Go!!! :-) She is such a fighter... Many prayers for you guys!

Ash

Tracy Meats July 11, 2009 at 10:30 PM  

Wonderful news!!! Keep up the progress Kamryn and we are praying for another good day on the vent weans. To be able to put clothes on your sweet baby is a big milestone.

Much love, Tracy

Candice and Rob Beal July 11, 2009 at 10:51 PM  

Thats my girl! lol....I can't wait to come visit yall in the summers when the kids are all better! Lot's of love to yall. Thanks for being here for us.

love Candice

Chanda D Brady July 12, 2009 at 1:38 PM  

I love reading this blog. CDH really brings us so much closer to our faith. I see so many little miracles out here in this blog world and am amazed at how you guys remain so supportive of other families when you have so much going on within your own family. Kamryn sounds like a real fighter and my prayers continue you to be with all of you. Chanda

Elizabeth July 12, 2009 at 6:58 PM  

Good for Kamryn! These little ones teach us patience beyond measure. We need to let them take the lead sometimes and follow them.

Keeping you all in my thoughts, prayers and Lung Function chants,
Elizabeth

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