>> Thursday, August 13, 2009
First, I have been working on a slideshow and I think I have the first draft completed. I'm one of those who is never satisfied with the final product so I am sure this will go through many revisions over the next couple of months, but I thought I would go ahead and post it.
Adjusting to life with twins at home has been an adventure, but we are starting to get into a routine. I know it is a little odd to say, but it took us a while to get out of the NICU routine and we miss parts of it. We miss the staff that we saw and talked with each day and oddly enough became used to the routine. We don't miss the alarms, tubes, wires, and anxiety that came with the routine, but the staff became like family to us and we miss them.
Transitioning from the NICU to home has taken a little while longer than I had anticipated. Kamryn has struggled with getting her nights and days sorted out. Actually, it doesn't seem to bother her, but it makes life interesting for us operating on very little sleep. Last night was actually the first night that she seemed to have worked it out and only woke up once. Brooke has it nailed and is getting much easier to keep happy.
We are still amazed at Kamryn's progress. She is eating great and hasn't spit up a single time. Brooke actually seems to have an occasional problem with spitting up, but not Kamryn. We reflect daily on just how lucky we are to not have any issues from CDH other than a scar on her belly (which is healing very nicely and is starting to blend in with her normal skin color). We are a bit anxious about our follow up appointments in early September with the cardiologist and surgeon. We hope that she checks out ok.
Things are really going great and here are some pictures of life at our house lately.