Reherniation

>> Monday, November 7, 2011

Like so many others, we never thought we would be posting this update. We found out yesterday that Kamryn has in fact reherniated. We are definitely still in shock because as each day has passed we gained more confidence that this condition was behind us. After two and a half years you really can get a false sense of security.

During Kamryn's initial repair surgery, a patch was used to close the hole in her diaphragm. The thought was that her own tissue would have surrounded the patch and permanently sealed the hole. This didn't happen and we are finding out it isn't completely uncommon to reherniate like this.

As of today you really wouldn't know anything was wrong. She doesn't have any signs of an issue with the exception of a cough (which is what prompted us to take her in). This could have been going on for some time now.

Here is a pretty clear picture of the problem. You can see the intestines are clearly in the wrong place in her left chest cavity.



Right now we are scheduled for surgery at Children's Medical Center in Dallas on Wednesday morning. They anticipate her stay to be 3 to 6 days depending on how long it takes for her intestines to wake up afterwards.

Thank you for all of the support and encouragement over the past couple of days. Our family and friends have once again dropped everything to come to our rescue. We are truly blessed and thankful to have you all in our lives. We are also in the most incredibly capable hands with Dr. Megison and the entire Children's team! We are ready for round #2.

Here are a couple of pictures taken today in the hospital.





Shawn and Stephanie

9 comments:

Kathryn Olmstead November 7, 2011 at 9:06 PM  

I did email you, not sure if you got it... but again please email me if you have any questions. K's stay was about 11 days.. her large intestine was reherniated and was full of poo- she was totally constipated. I do have the best hospital gowns, but I think it's a little late to send them to you if the surgery is Wednesday :( A friend had them made from Etsy for K's hospital stay. Hang in there.. it will get better!

Jennifer Dickerson November 7, 2011 at 9:15 PM  

Shawn and Stephanie,

We will continue to pray for Kamryn, your family and the doctors and nurses taking care of her in the days to come. I'm happy to hear repair surgery is scheduled and Dr Megison is involved. Love to all of you.

Jennifer and Todd

Bonnie November 8, 2011 at 7:43 AM  

Praying for you all. It's been so long for since you've updated, I did not expect to see an update like this! It's so scary that it can happen anytime and with very little signs of anything wrong.

Keep us posted. I'm sure the surgery will be smooth sailing.

Jen November 8, 2011 at 8:52 AM  

Thinking of you all! Reherniations are tough. Sights, sounds, and smells bring back earlier NICU memories. And it's so much harder seeing your sweet baby sick and frightened, because at this age they are much more aware of what is happening to them. But they are so much tougher at two and a half than as an infant and they bounce back so amazingly fast. Thankful it was caught early and there was no bowel obstruction. Praying for a quick recovery!

courtney November 8, 2011 at 9:27 AM  

We are praying for Kamryn and for all of you. Please know I love you all very much! Give all the girls hugs for me.

Tracy Meats November 8, 2011 at 10:55 AM  

I was in complete shock to read this news in a facebook post yesterday that Kamryn had reherniated. What a scary time for your family and percious Kamryn. Praying she has a successful surgery, no complications and is back to her normal self soon. Kamryn is so much stronger this time around. Even though she is more aware of what is happening, I pray she is surrounded by much love and comes through this well. She has the best parents, who love her dearly. Sending much love during this difficult time.

(((HUGS))),
Tracy, Ian's mom

reyacono November 8, 2011 at 8:17 PM  

I know we haven't done a very good job of keeping in touch, but I have been thinking of you often. Today, when I saw Jennifer's post on Facebook about Kamryn, my heart went out to all of you. Know that you are all in our hearts during this scary time and we have you in our prayers.

We hope everything goes smoothly tomorrow, and we will continue praying.

Big hugs,
Becki

Susie November 9, 2011 at 9:59 AM  

We are praying for Kamryn! Your blog was such a great source of help when we were in Dallas for our own CDH journey and it has been a blessing to see Kamryn and Hope grow up these last few years. We love Children's (our home away from home) and know you all are in good hands, but are mostly grateful that you are in the Lord's loving and strong hands. We will continue to pray fervently for your family and all the doctors involved.

Dale Budd November 9, 2011 at 11:48 AM  

Just saw the news, and am praying for sweet Kamryn, as well as all of the family. She is a tough cookie, and I know the angels will be watching over her, and she will bounce back quickly. May God be with you and Shawn as you wait for surgery to be completed.

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