Surgery Update

>> Wednesday, November 9, 2011

Surgery was successful and Kamryn is sleeping peacefully right now! It has been a pretty anxious day but Stef and I are feeling much better having the scariest part behind us.

The surgery started around 8:00am this morning and lasted about 2.5 hours. After talking to the surgeon, it appears the original patch she received 2 years ago had mostly dissolved. Her original patch wasn't goretex, but another material that was supposed to encourage scar and new tissue to basically grow over it. Once that happens, it wouldn't be an issue when it dissolved. Clearly, that growth did not happen and when it finally dissolved, it left a hole for her intestines to move through. This time we used a goretex patch that was left intentionally longer and wider than the hole so that it can grow with her as she gets bigger. The hope is that we won't need to do this again but there are no guarantees.

Everything went very well with only one notable issue. Kamryn's spleen isn't in the correct location. This doesn't cause an issue as far as function but it is located in the front instead of in the back. This means that it isn't protected by anything. We have to be mindful of this as she grows because if she gets an impact to the stomach she could rupture her spleen. For those of you that have spent any time with Kamryn, you know she is our fearless child who is always testing her physical limits. Doctor said we might need to look at enrolling her into the chess club instead of football which won't sit well with Kamryn.

Kamryn did have a small issue with keeping her oxygen saturation up without supplemental oxygen. It would dip into the 80's (like this to be 94 to 100) without aid so she is still on oxygen. I think this should be resolved by tomorrow. She also hasn't been able to pee so we are getting a little concerned. They have given her lasicks meds to try and fix that problem. We will see how that works out. Option B is a catheter which we would like to avoid.

We had a lot of visitors up here today which has been great and so meaningful to us during this incredibly scary time. The visits today and messages on our blog, facebook, email, and text really gave us the strength to get through all of this. Stef and I just can't believe how incredibly lucky we are to have the family and friends we have. All of you are nothing short of amazing and we appreciate your kindness, generosity, and support more than you will ever know!

Kamryn getting ready for surgery:

Kamryn going to surgery:

Hollie taking care of Kamryn:

Resting comfortably:

Thank you for all of your thoughts and prayers over the past few days. It worked and our little warrior princess is doing remarkably well!

Shawn and Stef


Kathryn Olmstead November 9, 2011 at 6:36 PM  

I'm so glad surgery went well.. !! The hard part is over.. now it's time for her to get stronger! :) When Kayla had her surgery, her appendix was on the wrong side.. so they just took it out. :) I'm sure the spleen issue will be ok with her eventually. :) praying for her to get stronger fast!!

reyacono November 9, 2011 at 7:49 PM  

I'm so glad things went well. Thank you for keeping us all updated. Maybe, instead of football, we can get her in the water to swim. And then we can put her on a bike. And then she could run! That's it! We'll get another triathlete in the family sooner or later! None of those things would jeopardize her spleen in front!

Hugs and kisses to everyone!

Jaime's World November 9, 2011 at 8:22 PM  

Please know that you are ALL in our thoughts and prayers. I know first hand how difficult it is to have your little one go back to the OR and to see them on meds and O2 again. Praying for a smooth recovery and to never, ever have to go through this again! ;)
The spleen thing is a bit random, then again, Jaime's kidney was sitting in his shoulder blade above his liver when he reherniated, so I think that's just the CDH way! ;)
Hang in there...sending our love!
Sheryl and the gang

the lowes November 9, 2011 at 9:27 PM  

hey Stephanie! Its Sarah Lowe (Carol Hopkins daughter!). Just wanted to tell you we had already been praying this week and will continue to ..God is good and Im so glad this surgery is over and went well! keep us all posted...blessings to you and your sweet family tonight!

Susie November 9, 2011 at 10:15 PM  

Thanking God for a successful surgery and for His hand on Kamryn! Continuing to pray for all of you!

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