What more could we ask for?

>> Thursday, May 7, 2009

Than to have an appointment like we had today! It was nothing short of outstanding! We saw Dr. Zaretsky, our Maternal Fetal Medicine doctor and both twins are doing exceptionally well for 31 weeks. Brooke is over 4 pounds now which is actually further along than she should be at 31 weeks. Kamryn is right on target for a singleton pregnancy weighing 3.13 pounds. We were scared that Kamryn would start to drop off a bit due to being a twin, but she's holding her own.

We were concerned about the amniotic fluid level around Kamryn and it did come back higher than we wanted at a little over 9 cm's. Normal range is between 2-8 and she has always been closer to the 8 cm mark than the 2 cm mark, but she went over at this visit. Basically, because of the CDH situation, Kamryn isn't able to cycle the fluid as well as Brooke through swallowing and respiration. I know Kamryn is trying her hardest to do her part, but her little organs are just not in the right place. Fortunately, the elevated fluid level is somewhat to be expected and it isn't a cause for immediate concern. If it continues to increase, it could potentially be an issue that we will need to address, but right now it is fine.

Then it was time for THE measurement.......... Lung to Head Ratio (LHR - we would like this to be above 1.4 as it can indicate a better prognosis). For all of you CDH families out there, hold on tight because you won't believe this. Lung area was 8cm and head circumference was 26cm. Divide those numbers and you get an LHR of 3. I know, I almost fell out of my chair also. I think Dr. Zaretsky did also and he indicated she really does have a lot of lung tissue on the right side that you can clearly see on the sonogram. We re-measured and made sure we could clearly see all four chambers of the heart (standard and accurate LHR measurement has to be taken when you can see all four chambers of the heart on the screen). Just because the right lung is large doesn't mean there won't be severe pulmonary hypertension or tell us how many alveoli are present, but larger size does help. We were still unable to see any liver above the diaphragm which is terrific news. We were thrilled and CAUTIOUSLY optimistic. We have another MRI in two weeks and I think we will have definitive measurements at that point.

And then, Dr. Zaretsky needed to talk with us about something in June...... I could tell where he was going before he even said it. Vacation! Our MFM is going on vacation in June when we are 36 weeks. I really did almost fall out of my chair with this news. It's hard to put into words what he has meant to us through this journey and I can't imagine him not being in the room to bring these two little girls into the world. He is a doctor like no other and we sincerely believe he is a true blessing in our lives. At the same time, we are thrilled that he gets to take a much deserved vacation and this will prove to be an incentive to make it to 37 weeks when he gets back!

It's been a great day for our family and we continue to appreciate the thoughts and prayers everyone is sending our way! It's working!



Jaime's World May 7, 2009 at 10:16 PM  

All I can say after reading your post is CONGRATULATIONS! What AWESOME news you found out!
Sounds like your little girls are doing great...CDH and all! :-)
Hang in there...the girls will be here before you know it!
God Bless,

Tracy Meats May 7, 2009 at 10:42 PM  

What a GOOD day!! I don't think you could have had a better check-up. Brooke and Kamryn are doing great and growing!! Many continued prayers for strength for both girls and your family. Sending you lots of energy to get through the weeks to come.

Take care,

Craig and Kristi Kuehl May 7, 2009 at 11:07 PM  

That is the BEST NEWS!!! I am continuing to think of you all and praying for those little girls. They will be here before you know it. Stephanie-try and get some rest, you're gonna need it! Much love...

Michael and Elizabeth Reeve May 8, 2009 at 3:48 AM  

WOW, WOW, WOW!!! That's amazing - I've never even heard of an LHR that high. You must be so delighted!

I'm glad things are looking so strong for Kamryn and Brooke.

I'm going to drop you an email in a bit but just wanted to say YEY in the meantime.

We'll keep praying lovely.

Mike & Beth xxx

Carissa May 8, 2009 at 7:09 AM  

Glad to hear you guys got an encouraging report. I wanted to say a quick thank you to you guys for the gift you sent. It is beautiful and nicely packed in Avery's bag! Thanks for your continued support!


AliciaB May 8, 2009 at 7:24 AM  

Oh Stef that is Wonderful news!! I am so happy to hear that everything went so great!
I can't wait to see you! : )
Hugs coming your way!

: ) Alicia

Marion May 8, 2009 at 8:19 AM  

That is AWESOME news. Your little girl is a fighter and will do well once she makes her entrance into the world. Send lots of love and positiveness your way! Take care of your self and those little girls.

Irvin family May 8, 2009 at 9:58 AM  

We are so proud for you guys. It was such a releef for us when we found out Oakley's HLR. Lots of prayers continue your way.

Anonymous May 9, 2009 at 8:57 AM  


Thanks for your message on our care pages site. Great to hear your positive news! Your family is in our prayers. Time is flying by for both of us. Please continue to keep in touch!

Sarah DiGregorio

Jonathan and Sarah May 9, 2009 at 2:51 PM  

That is truly incredible!! What an awesome visit! I'm so glad her heart is looking good & she has so much lung! What a miracle!!

Chanda D Brady May 16, 2009 at 8:50 AM  

I'm trying to catch up on everyone. I am so glad to hear how well your girls are doing!!!...also, praying that you make it past 37 weeks...goodness knows that we all have love and comfort from and for our particular doctors and want them near. ...your bible study shower sounded wonderful...hoping this next month goes by quickly for you!! ...take care, Chanda

marie May 18, 2009 at 9:53 PM  

praying for your precious babies , their nursery is so pretty, I had all boys so never got to see any pink until our grandaughter was born 26 years ago .

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