>> Monday, August 31, 2009
This horrible condition has taken another precious baby far too early. Yesterday, Ireland Rose lost her battle with CDH after a very courageous fight on ECMO. Chanda and Mike had to make the most unselfish decision a parent could ever be asked to make and let their little girl go to end the suffering. We can only imagine the pain and heartache they are going through right now. We know that words won't take their grief away, but I am sure your words will help lift their spirits so please visit their blog and let them know you are thinking about them during this incredibly difficult time.
I find myself confused and angry by all the CDH babies that have been lost out here in the CDH blog world. I know the studies say 50% - 65% survival (depending on the study and case selection), but it seems like less than 50% are surviving this horrible diagnosis. Please pray for the medical community to put more resources together in finding more effective treatments for this condition. Without additional research, the odds of survival aren't going to shift in favor of these babies.
We also ask that you pray for Candice and Rob Beal who are struggling to cope with the loss of their Baby Jackson. We also ask that you pray for Baby Max who is putting up an incredible fight right now while on ECMO. After an amazing CDH run, he had a significant setback and is fighting like crazy to win this battle. We know Claire and Jordan are emotionally exhausted right now. Hang in there guys and know we are praying for you all!