Post Surgery Day 2

>> Thursday, November 10, 2011

So sorry we are just now updating. It's been a long day with sweet Kamryn. The cell phone connection up here is not good so transferring pictures is difficult at best. I have so much to tell you.

Kamryn is doing great. Yesterday, I got to hold her 3 different times, and she fell asleep every time. If you know Kamryn, she is NOT the snuggle type, so I will take them when I can get them. When her meds start to wear off, she gets very agitated and doesn't like to be touched. Yesterday, she had a couple sips of apple juice. I tried to give her some jello, but she wouldn't eat it. Last night, we got her out of bed to walk, but she wouldn't take a single step. She would just stand there, and cry. Broke my heart. She finally stopped crying, and we tried to get her to walk to her "monkey", and even toys, but we couldn't fool her. She just kept saying no.

She is still on supplemental oxygen and sleeping most of the time. We are going to try walking again today. One of the doctors mentioned carrying her in a wagon to the front of the playroom, and maybe that will persuade her to get up and forget about her environment for a little bit. We are going to try to feed her some solids today as well. The sooner she is able to eat, the sooner she will poop and we can go home.
We had a lot of visitors yesterday and we continue to be blessed with support. We had friends, Parkland NICU nurses, and two of her primary NICU nurses up to visit.

We were also visited visited by Jennifer who is Ava Elaine's mommy. She surprised us with an amazing gift she has been working on for CDH. Jennifer worked with CHERUBS to donate an information kit for parents who are dealing with CDH. The kit was donated to Parkland in honor of Kamryn and we will be giving it to the fetal program this week. This would have been a fantastic help for us when we first found out and we are sure many future CDH families will benefit. Here is a picture of the kit:
Jennifer also told us that she is expecting. I had tears of joy in my eyes when she told me. She is 13 weeks, and is doing great. So far, sonos show that the baby is developing just fine, and it appears that her heart is in the correct place. Congratulations Jennifer! We love you!
Kamryn is doing very well overall and hopefully we will be out of here in a few days. Kamryn isn't very happy with the view out of her window..... Yes that is the heating and AC unit she gets to look at each day.

Kamryn is definitely heading in the right direction and all is well here. We continue to be amazed at the support we are receiving and just can't thank all of you enough for the gifts, messages, and love each day (and Peter and Cinnamon's house which has been Hollie's new home for the past few days)! All of you are simply amazing!
More to come tomorrow!


Tracy Meats November 12, 2011 at 2:50 PM  

Praying for beautiful Kamryn and her recovery! What a strong little girl you have. I hope she is walking better today and eating some real food....I am sure she is confused on why she is in the hospital, bless her heart. Hope she is home soon and keeps recovering with no complications. Jennifer, if you are reading this, my congratulations to you...praying for a healthy baby and pregnancy for you. That is so neat what she did in Kamryn's honor.

Much love and prayers to you and your family. Stay strong Kamryn!! You are one amazing little girl and I am sure your sisters miss you so much.

Tracy, Ian's mom

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